ORIGINAL PATIENT CASE
Summer 2020. Jilan is a 23 year old research scientist and patient. Together we're pursuing research on Juvenile Hypophosphatasia (HPP), a genetic, metabolic bone disease. Jilan works at an organic chemistry lab at the University of Minnesota and stays active in clinical trials and research advocacy for her condition. She recently spoke about her patient journey, and collaborating with Research to the People at Mayo Clinic.
READ Hypophosphatasia drug feature, "The $6 Million Drug Claim" - New York Times
Researchers are invited to contribute open analysis for this case, including but not limited to working within the themes of predicting disease severity, and exploring related comorbidity. This event will take place in the San Francisco Bay Area.